Hispanic caregivers experiencing higher caregiving burden than their non-Hispanic cohorts, due in part to contextual factors, such as barriers to accessing health care, challenging employment environments, low education and income, immigration issues, and minority stress. Spirituality may serve as a coping strategy for Hispanic caregivers that influences health-related quality of life (HRQoL), possibly by modifying loneliness associated with caregiving. We explored these concepts using semi-structured interviews (N = 10 Hispanic caregivers). Participants shared perceptions of loneliness, spirituality, and how these factors related to HRQoL. Five themes emerged: caregiver experience, coping strategies, loneliness, religion and spirituality to gain strength. Findings suggested that spirituality and religion improved HRQoL partially by reducing loneliness. Future programs to improve HRQoL in Hispanic English-speaking cancer caregivers should address spirituality.
中文翻译:
西班牙裔英语癌症护理人员的孤独感、灵性和与健康相关的生活质量:一种定性方法
西班牙裔护理人员比非西班牙裔群体承受更高的护理负担,部分原因是背景因素,例如获得医疗保健的障碍、具有挑战性的就业环境、低教育和收入、移民问题和少数族裔压力。灵性可以作为西班牙裔护理人员的一种应对策略,影响与健康相关的生活质量 (HRQoL),可能通过改变与护理相关的孤独感。我们使用半结构化访谈 (N = 10 名西班牙裔护理人员) 探讨了这些概念。参与者分享了对孤独、灵性以及这些因素与 HRQoL 的关系的看法。出现了五个主题:照顾者体验、应对策略、孤独、宗教和获得力量的灵性。研究结果表明,灵性和宗教部分通过减少孤独感来改善 HRQoL。未来改善讲西班牙语的癌症护理人员的 HRQoL 的计划应解决灵性问题。
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